Thankful for a good doctor

"Shining a light on Rheumatoid Arthritis&...

“Shining a light on Rheumatoid Arthritis” by mimitalks, married w/children (Photo credit: mimitalks, married, under grace)

I’ve mentioned before that I have a relatively new doctor.  She’s the one who added up all of the symptoms I’d been experiencing and ordered the tests for autoimmune diseases.  And she’s been willing to battle the insurance company to get drugs that she thinks will help me (still waiting on that magic elixir though).  She’s been able to fit me in when I’m feeling particularly terrible.  I can’t complain about her care, that’s for sure.

Today I had to call her office to see if she could write out a statement to give to my boss about some of the things I can’t do at work right now (his request).  I left a message and her nurse called me back a couple of hours later, asked a few questions, then told me they’d have it ready for me to pick up tomorrow.  That’s some pretty good service, don’t you think?

I have to admit, I’m concerned about my job.  I know I can’t do the things I was doing even a year ago.  And I know it has to frustrate my boss.  After all, the work still has to get done.  In my defense, I am doing various tasks that aren’t part of my job description, freeing up time for other people to do some of the things I can’t do.  But I’m afraid that’ll only go so far.

I know, I know…I’m worrying about things that may never happen.  I see the specialist next week (finally) and she may be able to snap her fingers, write out a prescription or two, and have me back to my old self in no time.  Could you maybe keep your fingers crossed that it happens that way?

Advertisements

RA sucks

If you have RA, you already know how much it sucks.  If you don’t have it, or some other condition in which you experience chronic pain (and don’t know someone who does), well…then you really have no idea.  I had the weekend off work.  And, of course, I had all these plans about what I was going to do with my free time.  We all know what they say about the best laid plans, right?

I spent the weekend in some of the worst pain I’ve experienced.  My left ankle froze up….I couldn’t bend it at all and it was pretty darn painful to put any weight on it.  That kind of threw a big monkey wrench in the weekend plans.  I just sat around most of the time.  Well, that and took naps.  Of course, I couldn’t really sleep because anything touching various parts of my body caused some pretty intense pain.  That makes a gravity-free chamber sound like a worthwhile investment…I’m just afraid something like that would probably wipe out my life’s savings and I might just need that money down the road for silly little things like, oh I don’t know, medicine?

I woke up this morning before the alarm went off.  I think the sounds I made when I tried to roll over scared at least one life out of the cats.  They both sat up and stared at me, wondering what language I was speaking and what it meant.  When I finally was able to struggle to the side of the bed, I tried to stand.  I’m thankful I never put full-length mirrors in my bedroom.  I’m pretty sure I was hunched over like a 90-year-old woman.  After hobbling around for a couple of minutes, I knew I wasn’t going anywhere today.  So I made the dreaded call in to work.  Fortunately, there were no threats telling me I better get in there or else.  Seriously, I’m lucky to have a great boss.  He’s understanding…or at least as understanding as someone who knows very little about RA can be.

After placing the call, I used the furniture and walls to support myself as I made my way to the bathroom.  I thought about going downstairs, but gave that thought up and climbed back into bed.  I couldn’t really go back to sleep, but Spooky snuggled up next to me, emitting her warm, healing cat vibes.  Amazing how much it helps to have a pet right there with you when you don’t feel well, isn’t it?

I finally struggled back to the bathroom and took a hot shower.  I really wanted to soak in the tub, but I was afraid I would have to crawl out of it today and that didn’t sound all that appealing to me.  I did finally get dressed…well, sort of…if you consider putting on a clean pair of pajamas getting dressed.  I think that’s as close to getting dressed as I’ll get today.

I made my way downstairs and fed the cats.  I looked at the juicer sitting there on the counter but couldn’t dig up enough energy to make some fresh juice.  I did have tea in the fridge that I’d prepared the night before for work.  What the heck, it’s wet.  It works just fine to wash down that handful of pills I take every morning.  And who knows?  Maybe I’ll feel like making some juice later on…it’ll taste just as good later in the day.

When I sat down at my computer, I started reading and replying to the posts of some of my favorite blogs.  That’s when it hit me.  I still have a week and a half before I see the rheumatologist.  I have no idea what to expect.  I do know this first visit won’t be that magic cure we’re all hoping for.  I think, in the back of my mind, I’ve been telling myself that once I see the rheumy, everything will be better.  I’ve read enough of other people’s experiences to know that that’s not likely to be the case.  So I’ve just got to suck it up and accept that this is apt to be a bumpy road. Guess I’d better look around and see if I can find a soft cushion to help me tolerate those big, bad bumps in the road, huh?

 

 

How do you like your juice?

I never really gave my morning juice much thought until I bought a juicer and started experimenting.  I downloaded a couple of ebooks for my kindle and have browsed through the recipes at SparkRecipes.com.  That gave me a lot of ideas about what to try.  My first attempt was…well…not something I’ll be trying again any time soon (or ever).

Green juice

Green juice

 

I used a couple of apples, 2 carrots, 1 stalk of celery, and a couple handfuls of spinach…yeah, not all that tasty.  I think the celery did it for me…I know it’s supposed to be good for you, but…uh…not really doing a lot for my taste buds.

Yesterday I juiced a couple of apples, two carrots, and 12 cherries…much better!  Tonight I juiced some oranges…for, you know, orange juice!!  My favorite so far…surprise, surprise!  I also juiced an apple and 12 cherries…tasty and such a pretty color…sorry, no picture of that…maybe later.

One thing I’ve quickly realized is that I’m going to have to figure out something to do with the pulp…I feel so wasteful just throwing it away.  I’ve read that some people use it in smoothies or soup…might be worth a try, you think?

If you have some suggestions for combinations that would make a tasty juice (or if you have any ideas about what to do with the pulp), let me know.

Week end update (non SNL version)

Juice Machine with Fruit

Juice Machine with Fruit (Photo credit: careyelaine)

We’re just about at the end of another week so I figured it was time to post a little update.  I know I haven’t been posting as much as I had been.  Seems like I come home from work just exhausted every night.  I do what I have to do at home, get online for just a bit, then head upstairs to bed around 7 or 7:30.  That’s ridiculously early, isn’t it?  But that’s the only way I can make it through the next day at work.

This was kind of an odd week at work.  We had two managers on vacation at the same time.  Believe me, I put in enough hours to cover for both of them.  I ended up calling our DM early in the week to okay overtime for myself.  I knew there was no way to get the work done in only 40 hours.  And yes, I know, overtime is probably one of the last things I should be doing for my health right now.

I finally broke down and ordered a juicer after researching them for weeks and weeks…debating myself about whether or not I would actually use one enough to justify spending the money.  I finally decided to take the plunge…I’ve really had no appetite of late and often find myself consuming 800-1000 calories a day.  I know enough about nutrition to understand that’s not likely enough to get proper nutrition…so…the magic elixir steps in…juice.  I haven’t used it yet although I did unpack it this morning,  washed it, and read through the instruction booklet (ooh…I see all my guy friends rolling their eyes at that!!).  I’m getting ready to make a juice recipe that I found on SparkPeople.com that has a lot of veggies in it as well as an apple.  I’ll let you know how my juicing experiment goes.

One very positive note, I’ve managed to lose some weight…18 pounds in the past couple of months…see, there are a few advantages in being sick!!